Scleroderma and Raynaud's UK
Categories of Work: Advice, support & information services, Health and well-being
Who do you work with?: All Client Groups
Organisation description: 10 million people are affected by Raynaud’s and 19 thousand with scleroderma. They can be experienced uniquely and are debilitating to many people’s day to day lives. Scleroderma itself can be life threatening. Our aim is to improve awareness and understanding of these conditions, aid those affected, fund ground-breaking research, and ultimately, to find a cure. We want everyone with the conditions to live as full and unlimited lives as possible, until we find a cure.
SRUK advocates for change and actively partners with prominent global and national NGO’s like RAIRDA (Rare Autoimmune Rheumatic Diseases Alliance) and the World Scleroderma Foundation. We also extend our support to similar organisations and join forces to present a collective standpoint that influences policies and collaboratively funds research efforts.
SRUK advocates for change and actively partners with prominent global and national NGO’s like RAIRDA (Rare Autoimmune Rheumatic Diseases Alliance) and the World Scleroderma Foundation. We also extend our support to similar organisations and join forces to present a collective standpoint that influences policies and collaboratively funds research efforts.
Contact details
18-20 Bride Lane, London, EC4Y 8EE